Living with ataxia: 5 tips for patients and caregivers

 


1️⃣ Create a Safe Environment

Falls are the biggest risk with ataxia. Make your space safe:

  • Remove loose rugs, wires & clutter.
  • Install grab bars in bathrooms & hallways.
  • Use sturdy, non-slip footwear (even at home).
  • Keep rooms well-lit & furniture stable.
  • Use a walker or cane if needed — safety first!

2️⃣ Prioritize Physiotherapy, Pilates & Speech Therapy

  • Regular physiotherapy helps maintain strength & balance.
  • Modified Pilates (under expert guidance) builds core stability & body awareness.
  • If speech is affected, speech therapy improves communication & confidence.

3️⃣ Use Assistive Devices (Without Hesitation)

  • Walkers, canes, braces — use what works for you.
  • Use apps or tools if speech/writing is difficult.
  • Assistive devices = independence tools, not a step back.

4️⃣ Take Mental Health Support Seriously

  • Living with ataxia is emotionally challenging. It’s okay to feel overwhelmed.
  • Talk to a counselor or join a support group.
  • Caregivers — you need support too! Don’t hesitate to ask for help.

5️⃣ Stick to Daily Routines (With Medications & Rest)

  • Fixed schedules for meals, meds, exercises & rest reduces anxiety.
  • Routine helps both the patient and caregiver stay organized.
  • Track symptoms & progress to spot patterns and adjust care if needed.

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